Osteogenesis Imperfecta

  • Osteogenesis Imperfecta Foundation

    On June 24, 2021 Tracy Hart, CEO of the OI Foundation, and Dr. Deborah Krakow, OIF Medical Advisory Council (MAC) member, discussed women's health and pregnancy research. This conversation is part of a series highlighting the work of the Brittle Bone Disorders Consortium (BBDC), a multi-center program that focuses on understanding and providing better treatment options for all types of

  • Osteogenesis Imperfecta Foundation

    On Wishbone Day, May 6, 2021, Cameron Penn, President of the OIF Board of Directors, interviewed Dr. Brendan Lee, Principal Investigator for the Brittle Bone Disease Consortium (BBDC). Their discussion covered the history of the BBDC, current OI research, and answered audience questions. This conversation is part of a series highlighting the work of the Brittle Bone Disorders Consortium (BBDC), a

  • The goal of this educational program, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes), the Rare Bone Disease Alliance (RBDA), and the Osteogenesis Imperfecta Foundation (OIF) is to build capacity to safely and effectively diagnose and treat rare bone diseases and disorders. Each monthly session includes a main presentation, participant-led case presentations, and

  • The Osteogenesis Imperfecta TeleECHO Clinic Series is a partnership between the Osteogenesis Imperfecta Foundation (OIF) and Project ECHO™ (Extension for Community Healthcare Outcomes). This monthly virtual education program aims to build capacity to safely and effectively diagnose and treat osteogenesis imperfecta (OI). Each monthly session includes a main presentation, participant-led case

  • Brittle Bone Disorders Consortium (BBD)

    Brittle bone disorders (BBDs), also known as osteogenesis imperfecta, include 13 inherited conditions involving bones that break easily. Brittle bone disorders can cause deformity and chronic pain and lead to premature death. The Brittle Bone Disorders Consortium (BBDC) includes ten medical research sites working to better understand and treat these disorders. The consortium aims to explore the