University Of California San Francisco
CAlifornia Biostatistics Epidemiology and Research Design (CABERD) Consortium provides a forum for BERD Programs in the California region to collaborate on joint initiatives. Established in 2021 during the COVID pandemic to provide a venue for collaboration and knowledge-sharing, the CABERD Consortium is a network of the following 8 participating institutions: Stanford University, UCLA, UCSF, UC
-University Of California San FranciscoThe CTSA Visiting Scholar program consists of giving the virtual CTSA Grand Rounds lecture, which is open to the entire CTSA Consortium, and virtual meetings between KL2 Scholars and faculty at the host institution and their KL2 peers. There are two main goals of this program. The first is to offer the opportunity to serve as a visiting professor and help make connections with faculty that will
-University Of California San FranciscoThe CTSA Visiting Scholar program consists of giving the virtual CTSA Grand Rounds lecture, which is open to the entire CTSA Consortium, and virtual meetings between KL2 Scholars and faculty at the host institution and their KL2 peers. There are two main goals of this program. The first is to offer the opportunity to serve as a visiting professor and help make connections with faculty that will
Job Summary The Associate Director provides key leadership to the Human Research Protection Program (HRPP) and manages the activities of IRB Coordinators. The HRPP Associate Director must collaborate with key research support units such as the Clinical Translational Science Institute (CTSI), Cancer Center, and other Advisory Committees at UCSF. The Associate Director manages the single IRB as well
Vasculitis refers to a group of rare diseases that involve inflammation of blood vessels, which disrupts blood flow and often causes damage to the body’s organs. The cause of most forms of vasculitis remains unknown, and treatments involve the use of strong medications that can have serious side effects. The Vasculitis Clinical Research Consortium (VCRC) is an international, multicenter clinical
Urea cycle disorders (UCDs) are rare but devastating genetic conditions. In 2003, the Urea Cycle Disorders Consortium (UCDC) became one of the first members of the RDCRN. Since then, UCDC has flourished into an international network of 16 academic centers in the United States, Canada and Europe that provide state-of-the-art care and conduct cutting-edge clinical research. The UCDC is currently
The Primary Immune Deficiency Treatment Consortium (PIDTC) was established in 2009 to study and define optimal treatments for rare genetic disorders of the immune system, collectively known as primary immunodeficiency diseases. The PIDTC includes 44 immunology and transplantation centers throughout the United States and Canada as well as six patient advocacy groups. In its first nine years, the
The porphyrias are a group of rare, inherited disorders, each caused by a deficiency with one of eight enzymes necessary to produce heme, an important component of hemoglobin and other proteins. The porphyrias are classified as either acute hepatic (liver) or cutaneous (skin); the former is characterized generally by acute attacks of severe abdominal pain accompanied by nausea, vomiting and other
The Brain Vascular Malformation Consortium (BVMC) focuses on three rare brain conditions: familial cerebral cavernous malformation (CCM), Sturge-Weber syndrome (SWS), and hereditary hemorrhagic telangiectasia (HHT). These disorders are poorly understood, costly to manage, and can cause serious complications such as hemorrhages, seizures, and problems with spinal cord, nerve or brain function. Over
August 25, 2020Nation’s Most Comprehensive Whole-Genome Screening Program Will Advance Inclusive Precision Medicine Across UCSF Health UC San Francisco scientists have launched a precision medicine initiative to offer free voluntary whole genome sequencing to all UCSF Health patients – making it the most comprehensive program of its kind in the nation. The goal of the initiative, called the UCSF 3D Health Study
July 21, 2020One of the first synergy papers supported by the CLIC and CTSA consortium was published in the Journal of Clinical and Translational Science. Abstract: A primary barrier to translation of clinical research discoveries into care delivery and population health is the lack of sustainable infrastructure bringing researchers, policymakers, practitioners, and communities together to reduce silos in
July 16, 2020The Clinical and Translational Science Institute’s Clinical Research Services (CRS) program at UCSF is excited to announce the FDA approval of the drug therapy Fintepla (fenfluramine) for Dravet syndrome, a severe form of pediatric epilepsy with frequent or prolonged seizures. CRS provided critical support for the drug research and trial over the past few years through its Pediatric Clinical
July 13, 2020CO-ACIT: COVID-19 & DISTANCE Study UCSF Surgeon-scientist Lucy Kornblith, MD (principal investigator) and her mentee, Zachary Matthay, MD (co-principal investigator) were awarded two grants for their proposed COVID-19 related research by the UCSF COVID-19 Rapid Response Pilot Grant program supported by the National Center for Advancing Translational Sciences, National Institutes of Health
June 25, 2020Since its launch in 2017, the Clinical and Translational Science Institute’s Sample Size calculator website (sample-size.net) has gained traction not only at UCSF, but nationwide – it had 300,000 sessions in the past year with users from 1,200+ universities. It is the standard site used for UCSF courses, including Designing Clinical Research and the undergraduate medical education courses on
June 12, 2020The Clinical and Translational Science Institute’s (CTSI) Community Engagement and Health Policy program (CEHP) is proud to announce that its UCSF COVID Patient and Community Advisory Board (PCAB) has been funded by the Patient-Centered Outcomes Research Institute (PCORI). The COVID PCAB was created to provide an easily accessible and efficient mechanism to help UCSF researchers obtain patient and
June 09, 2020Ida Sim, MD, PhD, co-director of the Informatics and Research Innovation (IRI) program at CTSI and professor of Medicine, shares insights on the CommonHealth project and app. CTSI provided funding support to pilot the app at UCSF. CommonHealth is an Android app similar in function to Apple Health. It is designed to make it easy for people to securely collect their electronic health record data and
May 06, 2020The Clinical and Translational Science Institute (CTSI) at UC San Francisco (UCSF), a unit within the Office of Research, will support, coordinate and respond to COVID-19 research needs. Some of CTSI’s efforts to support impactful COVID-19 research include: Pilot Awards The UCSF COVID-19 Rapid Response Pilot (C19 RRP) Grant Program, co-sponsored by the Academic Senate, CTSI’s Pilot Program, and
March 30, 2020Help fight COVID-19 in 5 minutes a day! Mark Pletcher (UCSF CTSI Director of Informatics & Research Innovation), Gregory Marcus (Professor, Medicine) and Jeffrey Olgin (Chief, Division of Cardiology / Co-Director, Heart and Vascular Center)are using their Eureka Mobile Research Platform—an NIH funded digital research platform—to launch a world-wide study to track COVID-19 symptoms, infections
UC BRAID, or University of California Biomedical Research Acceleration, Integration, and Development, is a network of five UC campuses - Davis, Irvine, Los Angeles, San Diego and San Francisco. Formed in 2010, the UC BRAID consortium aims to accelerate research and improve health through collaboration, sharing resources, and infrastructure development. We connect researchers and administrators to
March 13, 2020Note: First author, Jennifer Graves, MD, PhD, received a 2015 UCSF CTSI Pilot Award in Digital Health, which supported this clinical trial work. A multi-sensor band worn on the arm or leg, called Myo, can capture and relay difficulties with limb movement due to multiple sclerosis (MS) with an accuracy that mirrors gold standard measures of disability, like the Expanded Disability Status Scale
February 28, 2020When you go to drink out of a water fountain, what you think may come out depends a lot on your background. For many people, especially in San Francisco, it is clean, pristine drinking water. Others, however, may be less trusting, and they imagine contaminated water or something that may make them or their children sick. Scientists and community advocates hope that it is something else entirely
University Of WashingtonUniversity Of California San FranciscoClinical mentoring is a vital component of a comprehensive clinical training program, helping to bridge the gap between new skills, knowledge, and attitudes obtained in the classroom, and effective application of these in the health care setting. This clinical mentoring toolkit is a comprehensive guide for developing, implementing, and evaluating clinical mentoring programs. This updated edition
University Of California San FranciscoUniversity Of RochesterUniversity Of California DavisVanderbilt University Medical CenterCTSpedia was created as a national effort to collect wisdom, tools, educational materials, and other items useful for clinical and translational researchers and to provide timely and useful advice to clinical and translational researchers with specific problems. About the CTSpedia Project CTSpedia started as a pilot project initiated in 2007 at UCSF. The project was initiated to form an
February 14, 2020Celebrating ten years of shared infrastructure and programs that accelerate research and improve health, UC BRAID convened its annual meeting on October 14-15, 2019 at the UCLA Luskin Conference Center. UC BRAID, the University of California Biomedical Research Acceleration, Integration, & Development, is a consortium of the five UC academic medical centers—Davis, Irvine, Los Angeles, San Diego
December 12, 2019Tippi MacKenzie, MD, UCSF-CTSI Catalyst Program Awardee, was recently featured in an in-depth news story about her team's pioneering approaches in fetal gene therapy. By the time a baby is born with a catastrophic genetic disease, medical help is too little, too late. UC San Francisco doctors are studying a bolder and better remedy, far earlier: repairing genes before birth, stopping disease
November 15, 2019Shuvo Roy, PhD, is a four-time UCSF CTSI Catalyst Program Awardee, for different applications of his silicon membrane technology including for the kidney, artificial pancreas and high efficiency external ambulatory lung. The project team received a Fall 2017 Catalyst Award to collect data on their artificial kidney membrane prototypes and provide sterilization procedures information to the FDA as
University Of California San FranciscoBoth Biospecimen Precision Medicine Research (BIOS) Program and Catalyst Program, the current UCSF Clinical and Translational Science Institute’s (CTSI) optional cores, provide much needed services and infrastructure to conduct clinical translational research. The BIOS Program has developed a repository of high-quality human biospecimens for world-class research and precision medicine efforts. The-
University Of California San FranciscoThe CTSI MTP has created an integrated environment for senior mentors and mentors-in-training, encouraging creative and innovative networking, discussing a range of mentoring challenges and a myriad of solutions, developing a toolbox of strategies, and using discussions and collective experiences to build a community of mentoring excellence. Seminar topics include: Mentorship from the Beginning
University of California, San Francisco
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