2019 CTSA Program Community Partner Engagement Survey

Purpose

To better understand the roles and experiences of community stakeholders and partners in CTSAs.

Executive Summary

Clinical Translation Science Awards (CTSAs) provide infrastructure to enhance community engaged research across the entire translational spectrum. Community
stakeholders/partners are essential to assisting CTSAs build infrastructure to support and nurture community engaged research. The goal of this survey was to better understand the roles and experiences of community stakeholders and partners in CTSAs.

Hubs were asked to provide names of community partners that they wished to send a companion survey. Thirty-one hubs provided information for at least one community
partner, but the majority (10) provided information for 5 community partners. Several hubs expressed discomfort at having CLIC contact their community partners directly
and requested that their partners complete the survey via public survey link, which they were provided.

The names of 99 community partners were provided to CLIC to receive the companion survey and of those 36 responded. Five additional responses were submitted via
anonymous public survey link for a total of 41 respondents and an overall community partner response rate of 39.4%. The companion survey was sent out in batches as
names were submitted starting on 10/14/19 and data collection for the companion survey ended on 11/15/19.

The survey included three open-ended items about why they chose to partner with the CTSA Program hub, how they felt about their relationship, and to provide any additional
comments they may have. The text responses were coded multiple times, via an open read through and then broken down into core themes. Text responses were
independently coded by a minimum of two coders, who agreed on the theme or themes present in the response. The majority of the community partners indicated that they
partnered with the hub because they thought the hub had expertise that would be beneficial to the community (n=12) or because they thought their community expertise
would be beneficial to the hub (n=7). This was further supported by a majority of respondents (n=15) indicating that their relationship with the CTSA program hub was
“collaborative/mutually beneficial.”

Distributed Date

October 14, 2019

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Instrument Fields

Order	Instrument Field
1	Which option below best describes you/ your organization/ your network?
2	Provide 'Other' description of your organization
3	If affiliated with an organization, what is your role in your organization?
4	Provide "Other" role
5	How long has your organization/ your network been in operation (in years)?
6	Which CTSA Hub are you affiliated with?
7	Provide 'Other' Hub:
8	Why did you/your organization/ your network choose to partner with the CTSA?
9	How much time do you/ your organization/ your network spend performing activities for the CTSA (includes attending meetings, reviewing documents, reading emails and speaking with staff and board members)?
10	Specify "Other" time commitment
11	What roles do you (and/or members in your organization) have in your CTSA? Check all that apply
12	Provide 'Other' role in the CTSA
13	Do you GENERALLY receive financial compensation for your involvement in CTSA activities?
14	During a 12-month period, about how much compensation do you receive for the time you spend doing CTSA-related activities? Please give an annual amount, regardless of how you are paid.)
15	What kind of compensation do you GENERALLY receive? (Select all that apply).
16	Describe "Other" type of compensation
17	What benefits have you/ your organization/ your network experienced by working with the CTSA? [check all that apply]
18	List 'Other' benefits
19	Currently, how committed is your organization to contributing to the mission of the CTSA?
20	How committed is the CTSA to maintain and continue your organizations/practice as a partner?

Submitted by Laura Hassinger on Thu, 07/22/2021 - 12:37