Brittle Bone Disorders

  • The goal of this educational program, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes), the Rare Bone Disease Alliance (RBDA), and the Osteogenesis Imperfecta Foundation (OIF) is to build capacity to safely and effectively diagnose and treat rare bone diseases and disorders. Each monthly session includes a main presentation, participant-led case presentations, and

  • The Osteogenesis Imperfecta TeleECHO Clinic Series is a partnership between the Osteogenesis Imperfecta Foundation (OIF) and Project ECHO™ (Extension for Community Healthcare Outcomes). This monthly virtual education program aims to build capacity to safely and effectively diagnose and treat osteogenesis imperfecta (OI). Each monthly session includes a main presentation, participant-led case

  • Brittle Bone Disorders Consortium (BBD)

    Brittle bone disorders (BBDs), also known as osteogenesis imperfecta, include 13 inherited conditions involving bones that break easily. Brittle bone disorders can cause deformity and chronic pain and lead to premature death. The Brittle Bone Disorders Consortium (BBDC) includes ten medical research sites working to better understand and treat these disorders. The consortium aims to explore the