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This 10-session course introduces the basics of clinical research design, including: biostatistics, design of diagnostic and predictive test studies, required/desired elements of clinical trial protocols, the regulatory aspects of clinical research conduct and oversight, Good Clinical Practice (GCP), and ethical dimensions of clinical research. Open to faculty, fellows and staff within the CTSA. A
Participant recruitment is one of the greatest challenges to successful clinical research. The Research Participant Engagement Program (RPEP) provides resources and tools to help study teams meet their participant recruitment goals, with a focus on engaging patients as partners in research. Services include Direct Email, Epic (Children’s) MyChart, Epic (Adult) MyHealth, Postal Mail, and Stanford
Register to attend Stanford University's webinar regarding Data Quality on Thursday, June 9, 2022, 2:00 pm ET. You will hear from Rajnesh Prasad, Ruth O'Hara, Priya Desai, Nigam Shah, Patricia Moussatche, and Somalee Datta regarding Stanford University's efforts to improve the quality of its research data and the increase in the frequency with which it refreshes data.
This 10-session course course provides an overview of basic principles of clinical research design, including biostatistics; study design and interpretation of diagnostic and predictive test studies; and required and desired elements of clinical trial protocols. Participants will be introduced to the regulatory aspects of clinical research conduct and oversight, Good Clinical Practice (GCP)
"Precision health holds great potential for revolutionizing health disparities research and interventions through a better understanding of the complex interplay between biological, behavioral, environmental, and social factors that contribute to health inequalities and influence population health. But the goal of achieving equity in precision health will require addressing persistent scientific
Join Stanford Medicine | Office of Community Engagement for a COVID-19 COMMUNITY TOWN HALL this Thursday, May 27th | 3:30-5:00 PM PDT What's on the horizon? Address Emerging Issues Around COVID-19 Vaccines for Children, Variants of the Virus, and Mask Guidelines Online Event | Register Today! Spanish Translation Available on Zoom Only FEATURED SPEAKERS • Yvonne (Bonnie) A. Maldonado, MD, FAAP
KL2 awardees from Clinical and Translational Science Centers (CTSA) present virtual lectures as part of the CTSA Visiting Scholar Program. Francesca Stillitano, Ph.D., from the Icahn School of Medicine at Mount Sinai, will present her research "Modeling familial and acquired cardiomyopathies using next-generation human-based models." Modeling familial and acquired cardiomyopathies using next
KL2 awardees from Clinical and Translational Science Centers (CTSA) present virtual lectures as part of the CTSA Visiting Scholar Program. Eliot Peyster, MD, MSc, from the University of Pennsylvania, will present his research “Computational Histologic Analysis for the Diagnosis of Heart Transplant Rejection.” Computational Histologic Analysis for the Diagnosis of Heart Transplant Rejection (4/14
Urea cycle disorders (UCDs) are rare but devastating genetic conditions. In 2003, the Urea Cycle Disorders Consortium (UCDC) became one of the first members of the RDCRN. Since then, UCDC has flourished into an international network of 16 academic centers in the United States, Canada and Europe that provide state-of-the-art care and conduct cutting-edge clinical research. The UCDC is currently
The Primary Immune Deficiency Treatment Consortium (PIDTC) was established in 2009 to study and define optimal treatments for rare genetic disorders of the immune system, collectively known as primary immunodeficiency diseases. The PIDTC includes 44 immunology and transplantation centers throughout the United States and Canada as well as six patient advocacy groups. In its first nine years, the
Mitochondrial diseases affect approximately 1 in every 5,000 people. These diseases can cause muscle weakness, difficulty thinking, seizures, hearing and vision loss, digestive problems, learning disabilities, and organ failure. The North American Mitochondrial Disease Consortium (NAMDC) is a network of clinicians and researchers at 17 different clinical sites working to better understand
Focal and Segmental Glomerulosclerosis, Minimal Change Disease, and Membranous Nephropathy, presenting as Nephrotic Syndrome (NS), are a group of rare renal diseases that may cause serious complications and end-stage kidney disease, generating significant individual, societal and economic burdens. The Nephrotic Syndrome Study Network (NEPTUNE) brings together physician scientists at 26 sites in
Leukodystrophies are a complex, often progressive group of disorders affecting the white matter of the brain due to the loss or absence of myelin, the lipid membrane that insulates axons in the central nervous system. Despite advances in the diagnosis of these disorders, they remain widely under-recognized, with unmet gaps in clinical care and curative therapeutics. The Global Leukodystrophy
The Genetic Disorders of Mucociliary Clearance Consortium (GDMCC) focuses on several inherited and acquired disorders that cause thickened, infected secretions to accumulate in the upper and lower airways. Its work is conducted at eight clinical research sites across the United States and Canada. During the past 15 years, the consortium has made numerous advances that profoundly changed clinical
The Congenital and Perinatal Infections Consortium (CPIC) is focused on reducing the morbidity and mortality of rare viral infections such as congenital cytomegalovirus (CMV) disease, neonatal herpes simplex virus (HSV) infection, and neonatal viral sepsis caused by enteroviruses (EVs) and the related human parechoviruses (HPeVs). These infections have been grouped together because of their
Join Stanford Medicine Office of Community Engagement for the 6th Virtual Town Hall on the COVID-19 outbreak, focusing on Vaccine Clinical Trials. Topics will include: How do vaccine clinical trials work? What do we know about the current vaccine trials underway in the United States? How do we know if it’s safe to participate in a trial? Who can/should participate in vaccine trials? Perspectives