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Informatics the Journey Continues logo showing the five areas that make up the series: Data Completeness, Data Quality, Data Standardization, Process Improvement, and Resources
When Rutgers University and RWJ Barnabas Health (RWJBH), New Jersey’s largest healthcare system, partnered as part of the New Jersey Alliance for Clinical and Translational Science (NJ-ACTS) to combine their clinical enterprises and jointly manage research activities, the two entities’ academic and corporate cultures were sometimes at odds with one another.
University of Virginia

Electronic medical record (EMR) data is encoded in patient charts through the course of clinical care and subsequent patient billing. Coded data in the electronic records (such as information stored as ICD/CPT/LOINC/RxNorm codes) provide vast amounts of valuable patient data. However, effectively applying data science tools to EMR data requires understanding dataset limitations and avoiding common

University of Arkansas for Medical Sciences
Informed consent forms (ICFs) and practices vary widely across CTSA institutions. A recent survey identifies “Collecting and Disseminating Best Practices'' and “Template Broad Consent Documents” as informed consent priorities among CTSAs[1]. We have previously developed a “plain language” informed consent template, which was widely adopted by our CTSA hub and meets recommended reading levels for
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Georgetown University

Register now for the 10th Annual Health Informatics & Data Science Symposium at Georgetown University. This event will be held, virtually, October 8th from 9 AM - 12:30 PM. Featured are presentations from Dr. Anant Madabhushi, Ph.D.; Dr. Lucila Ohno-Machado, MD., Ph.D.; Iker Huerga, M. Sc.; as well as our Keynote Speaker, Dr. Amy Abernathy who will speak on the topic: "Future of Digital Health

This webcast provides an overview of concepts and approaches that hubs may consider in reaching data interoperability.
The interview-style webcast includes a variety of appropriate competencies for informatics personnel, as well as suggestions for best training practices.
This webcast identifies appropriate personnel for your informatics research team and suggestions for addressing their training needs.
The webcast identifies key partners and their importance in improving the Informatics metric.

The webcast describes methods for implementing data governance, ensuring data provenance and improving the ETL process

This webcast explores the importance of data standardization and warehousing for clinical research.
This webcast examines common data quality issues and provides suggestions for correcting them.

Congratulations to SC CTSI Clinical Research Informatics leadership team members Neil Bahroos, MBA, Daniella Meeker, PhD, and Juan Espinoza, MD on their stellar presentation at the annual CTSA Spring Meeting on April 14, 2021. Their virtual breakout session was so popular that attendance filled up and had to be capped. Bravo! Social Determinants of Health (SDoH) are social and economic conditions

Center for Data to Health
Sage Bionetworks, in collaboration with Medical College of Wisconsin (MCW) and Mayo Clinic, will present with Hongfang Liu, PhD and Thomas Schaffter, MSc, PhD. The CD2H NLP Sandbox is an open platform for benchmarking modular natural language processing (NLP) tools on both public and private datasets. Academics, students, and industry professionals are invited to browse the available
To accelerate translation, researchers need access to a broad range of data from a variety of sources (electronic health records, imaging, genetics, behavioral, etc.). These sources manage and store data differently, which creates the need for standardization. The Informatics Common Metric, which is in its second year, addresses the need to harmonize data across the CTSA Program. This will enhance
The webcast provides examples of how data interoperability was used in the N3C program for the COVID-19 pandemic. The first five webcasts are an introduction to informatics, created to build foundational knowledge and to define key terms. We encourage you to watch them in order.
The webcast demonstrates the impact of organizational maturity on metric improvement. The first five webcasts are an introduction to informatics, created to build foundational knowledge and to define key terms. We encourage you to watch them in order.
The webcast describes the purpose of the Informatics metric and its value to the CTSA Program. The first five webcasts are an introduction to informatics, created to build foundational knowledge and to define key terms. We encourage you to watch them in order.
The webcast provides definitions and examples of commonly-used Informatics terms and phrases. The first five webcasts are an introduction to informatics, created to build foundational knowledge and to define key terms. We encourage you to watch them in order.
The webcast describes the process used to identify themes from the 2019 Turn-the-Curve plans submitted by consortium hubs for their Informatics metric. The first five webcasts are an introduction to informatics, created to build foundational knowledge and to define key terms. We encourage you to watch them in order.
A leader in Informatics and creator of Harvard Catalyst Profiles discusses his innovative work to make COVID-19 research data available to the world. Griffin Weber, MD, PhD is the co-faculty lead for Harvard Catalyst’s Informatics team. He’s an associate professor of medicine and biomedical informatics at Harvard Medical School and at Beth Israel Deaconess Medical Center (BIDMC), where he directs
The logo of Penn State CTSI
Pennsylvania State Univ Hershey Med Ctr
Penn State Center for Health Organization Transformation (CHOT) hosts its virtual Smart Health Research Colloquium from 4:30 to 6:00 p.m. on April 28. Registration is required here. Kal Pasupathy, faculty member in the Mayo College of Medicine and the Kern Center for the Science of Health Care Deliver, will present “Informatics and Data Science: Enhancing Health and Care Delivery through Learning
This webinar will outline changes to the 2020 data that hubs will need to submit for the Multi-Year Report. Access to scientific data is essential for developing new treatments and prevention strategies. The intention has been to evolve the Informatics Common Metric over time. The goal of the Informatics metric is to measure the quality and completeness of data in research data warehouses across

John Baratta, MD, MBA helped start the UNC COVID Recovery Clinic—where patients can get help for their ongoing symptoms and doctors can gather valuable data. “We don’t have a lot of specific, scientific answers because it’s just all so new,” Baratta says. “Through research, that’s what we and others have to figure out.” To start finding answers for patients with "long COVID," the clinic team, with

Registered nurse Rachel Pryor had collected 2,000 COVID-19 antibody tests and 2,000 surveys. And she needed to know, in the early weeks of the pandemic, what they said about the risk of the novel coronavirus for health care providers. “The prevalence of antibodies in providers was one way for the health care system, and the community in general, to better understand the prevalence of COVID-19,”
Melissa A. Haendel, PhD, has been named Chief Research Informatics Officer (CRIO) for the University of Colorado Anschutz Medical Campus, a newly created position responsible for transforming the campus use of information and information systems to accelerate biomedical discoveries, streamline health system operations, and continuously improve patient care. The CRIO office will lead efforts to
UVA-iTHRIV Brain Institute
University of Virginia

The Foundations of Biomedical Data Science virtual seminar series is an exciting and topical set of regularly scheduled, weekly, webinar presentations covering the basics of data management, representation, computation, statistical inference, data modeling, & other topics relevant to “big data” biomedicine. The seminar series provides fundamental topic introductions suitable for individuals at all

The purpose of this survey is to solicit information on the creative innovations and adaptations made by the hubs in response to the COVID-19 pandemic.

Anita Walden (CD2H/N3C), Nicole Garbarini (NCATS), Heidi Spratt (UTMB), Charisse Madlock-Brown (UTHSC), and Sally Hodder (WVU) give an overview and update on the status of the N3C and governance policy, with a focus on Clinical Domain Teams, IDeA-CTR partnership, and engagement. N3C overview and status updates Data agreements; status and process Domain Teams, value, and opportunities Social
University Of California Davis

The UC Davis CTSC applied the CTSA program goals to assist the division of pulmonary and sleep medicine with the recruitment, examination, and treatment of a diverse array of participants into an industry-funded COVID-19 vaccine trial. The project encompassed all five of the CTSA program goals and resulted in a robust study population. The first 80 subjects were recruited, screened, and scheduled

University Of Miami School Of Medicine

The COVID-19 pandemic, while a significant disruptive event for research, resulted in a novel focus area for clinical and translational (C/T) researchers. Miami CTSI rapidly responded to this critical need by leading a collaborative effort to facilitate COVID-19 research and education initiatives for researchers and community stakeholders, while implementing innovative solutions to continue other